My son was often sick. His medical record included: inflammations, dystonia, heart problems – it's easier to list what he didn't have. No examinations helped find the cause, even doctors in the Czech Republic couldn't make an accurate diagnosis.
Finally, we learned about the possibility of getting a consultation at St. Mary's Clinic. It was there, after so many years, that an endocrinologist finally said what was wrong: my son had Marfan syndrome. Although this disease is incurable, we saw the source of the problems and were able to understand how to at least fight the symptoms.








